Dementia Information on the Web

[norbert1]

Dementia information on the Web

****General Information*********

Helpguide.org (a mental health and senior living site)
www.helpguide.org/index.htm
www.helpguide.org/elder/alzheimers_disease_symptoms_stages.htm scroll to the bottom of articlefor list of other articles

Mayo clinic
www.mayoclinic.com/invoke.cfm?id=DS00161
Good site for basic Alzheimers information

Alheimers Association (US)
www.alz.org
List of fact sheets –
www.alz.org/Resources/FactSheets.asp
or
www.alz.org/alzheimers_disease_publications.asp

The Lewy Body Dementia Association
www.lewybodydementia.org/

The Association for Frontotemporal Dementias
www.ftd-picks.org/

ADEAR (National Institute on Aging)- dementia factsheets
www.niapublications.org/adear/

Family Caregiving Alliance
www.caregiver.org/caregiver/jsp/home.jsp
List of Factsheets
www.caregiver.org/caregiver/jsp/publications.jsp?nodeid=345

Alzbrain.org - very simple fact sheets plus professional level information
www.alzbrain.org/
List of Factsheets
www.alzbrain.org/modules.php?name=Sections&op=listarticles&secid=2&index=1

Alzheimer’s Outreach
www.zarcrom.com/users/alzheimers/
once inside, click on “Alzheimer’s directories” to the information section
Also non-Alzheimers dementias (at bottom of page) or at….
www.zarcrom.com/users/alzheimers/odem/index1.html

Eldercare on line, Alzheimers and dementia care channel
www.ec-online.net/alzchannel.htm
helpful practical articles on everyday issues - bathing, continence, etc.

Alzonline.net sponsored by the University of Florida
a number of caregiving issues are covered in a very professional manner by appropriate experts. Topics include bathing, swallowing, etc
www.alzonline.net/

******** Online Dementia Manual ************

The Rush Manual for Caregivers
www.rush.edu/Rush_Document/CaregiversManual.pdf

This is an excellent read, recommended by many caregivers
"Understanding the Dementia Experience"
by Jennifer Ghent-Fuller (28 pages)
www.alzheimercambridge.on.ca/Unde....0Experience.pdf

********News Letters************

Alzheimers Association “Advances” (not sure it is published anymore, but archives are available)
www.alz.org/Resources/Newsletters.asp

ADEAR “Connections"
www.alzheimers.org/pubs/conindex.htm

Alzheimers Foundation magazine “Advantage”
www.alzfdn.org/publications/index.shtml


Ageless design “ News for the week”
alznews.org/
note - there is a click box at the bottom that will take you to archives for the past 3 months

The Ribbon
www.theribbon.com/issues/alt.asp?volume=9

*******News about Dementia *********

Alzheimers Daily News
alznews.org

Alzheimers news from Medical News Today
www.medicalnewstoday.com/sections/alzheimers/

********Specific Topics**************

General Medical information - The Merck Manual of Geriatrics
www.merck.com/mrkshared/mm_geriatrics/home.jsp
index
www.merck.com/mrkshared/mm_geriatrics/index/ind_a.jsp

Alzheimer’s disease explanation (plaques, tangles, etc)
From ADEAR-NIA (at National Institute of Health)
www.alzheimers.org/
“Alzheimer’s Disease: Unraveling the Mystery”
www.alzheimers.org/unraveling/

Home Safety for People with Alzheimer's Disease
www.alzheimers.org/pubs/homesafety.htm
(There is also a book - The Complete Guide to Alzheimer's-Proofing Your Home. It's written by Mark L. Warner (a co-owner of Ageless Design, Inc.) and is published by Purdue University Press. It's huge (well over 400 pages). It may be available at your local library.

Hiring an In-Home health aide
www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=407
www.michigan.gov/documents/miseniors/CaregiverHiringGuide_176399_7.pdf

Incontinence - Beverly Murphy has written extensively about incontinence on her website
www.bigtreemurphy.com/index.html
click on "incontinence" on the toolbar at the top of the page
www.bigtreemurphy.com/MenuIncon..htm

Elderlaw Answers – SSI disability, Medicare, Medicaid, etc
www.elderlawanswers.com/
Click on “Elderlaw information (left) for:
SSI disability
www.elderlawanswers.com/resources/s8/r36602.asp
Medicaid
www.elderlawanswers.com/resources/s8/r36618.asp
Medicare
www.elderlawanswers.com/resources/s8/r36690.asp

Medicaid discussion at
www.alzsupport.com/
click on “Medicaid Planning Guide”<br>
Advanced directives info - POA for health & Living Wills
Partnership on Caring
www.partnershipforcaring.org/HomePage/
(click on advanced directives on left column)
www.partnershipforcaring.org/Advance/index.html

Medicare's Nursing Home Comparator lists and reviews most facilities and identifies the ones which are Medicaid qualified.
To learn inspection results - enter zip code, check on NH name, click next step (bottom of page), (# of deficiencies then displayed), click "View all information", click "inspection results"


End of Life Decisions - DNR, Feeding tubes, Paliative care
"Hard Choices For Loving People"- order booklet or read on-line
www.hardchoices.com/

Brain Donation
info and video from Harvard Medical School brain bank
www.brainbank.mclean.org

*******Alzheimer Merchandise*********

The Alzheimers Store
www.thealzheimersstore.com/

[larayne]

Norbert could you leave this message on for awhile so I can write it out by hand? If I print it... it will use all my colored ink. Thanks Lara

[ridzene]

One more link. I like it really, it has pictures.

neuro.health.ivillage.com/common/articleprintfriendly.cfm?artid=3968

Zene

[gaill55]

Thanks- this sure helped- very much appreciated!!